After Steven was diagnosed with Lebers Hereditary Optic Neuropathy (LHON) and lost his sight 3 years ago… He had no idea he would experience what he calls, one of the best years of his life.
Reflecting back on one of the best years of my 44 years | A Blind Reflection by Steven Reed
Today is my parents 46th wedding anniversary.
It also happens to be the 3rd anniversary of the diagnosis of my sight loss condition, LHON, so it’s a good time for a reflection, I feel.
This last year has been amazing. I’d go as far as to say, it’s been one of the best of my 44 years.
As an actor, I appeared in 2 TV series, Chewing Gum & Eastenders, as well as filming a small role in a feature film, with Will Ferrell, Ralph Fiennes and Rob Brydon. I also appeared on stage with Extant, the country’s leading VI theatre company and will be taking the same play to 2 more festivals later this year. A busy year then, which also included a short film with an interesting concept. I can’t wait to see how it turns out.
I continued to volunteer at the RNIB, which is very fulfilling and rewarding. I’m giving back to those on the course that I got so much from. I even stood in and facilitated the course while the boss was off long term sick.
I’ve got myself a girlfriend!! We’ve known each other over 2 years, but got together in March. She is a beautiful, wonderful woman and we are so happy together. We also both have the same rare condition. Apparently there are only 35000 people in the world with our condition… what are the chances of that?!!
Recently, I got behind the wheel of a car again, after 3 years of not driving. It was with a company called Speed of Sight, who specialise in driving experiences for the disabled and the guy that set it up is VI. It was amazing and exhilarating and I would recommend it to anyone. (See video below)
Inspired by my cousin, I’ve had a go at some VI sports, attended dance classes run by Illuminate Freedom and helped out on the Equity Deaf & Disabled Committee.
So I’m sure you can see why I’ve had an amazing year!! That’s due to continue as I’m off to Orlando in a couple of days, with my family and will be going to Croatia with a play in October.
This blind man is already looking forward to next year’s look back!! (Facebook post-July 31, 2017)