Have you ever received a phone call with some unexpected bad news that would change your life forever? Do you remember the exact day and time? I have and I remember the day I received my diagnosis. On September 24, 2013 – 5:30 PM…. I got a call from my Neuro- Ophthalmologist. He broke […]
Archives for September 2014
And Then I Stepped Up To The Podium And Told My Story
As you recall, I spoke at the LHON symposium last June in Pittsburgh in front of many people from the LHON community. The whole day was videoed so that anyone who didn’t make it to the symposium could benefit at a later time. Well, the time is NOW! Over 7 hours of content are broken into 9 numbered […]